6 of the Best Apps for Chronic Illness Management
Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to…
Articles by Wendy Henderson
How Physical Therapists Can Help Children With Neuromuscular Disorders
https://www.youtube.com/watch?v=9z4jkn4Wv3w In this video from MoveForwardPT, a physical therapist (PT) from the Children’s National Medical Center…
The Daily Impact of SMA Types 2 and 3
In this video from Cure SMA taken at the SMA patient-focused drug development meeting with the…
Managing SMA: Swallowing and Sucking Muscle Weakness
As the muscles in the mouth and throat become weaker in babies and children with spinal muscular atrophy (SMA) it leads…
10 Tips for a ‘Common Sense Approach’ to Life With a Chronic Illness
While living with a chronic illness can be challenging, there are ways that you can make life easier and live a happy…
‘Life and Atrophy’: A Documentary About a Young Boy’s Journey With Spinraza
Documentary filmmaker Gareth Burghes first heard of spinal muscular atrophy (SMA) through his father’s work as a geneticist. He…
The Importance of Speech-Language Pathologists for Neuromuscular Disorder Patients
Speech-language pathologists (SLPs) or speech-language therapists (SLTs) do much more than help people with speech problems such as stuttering or mispronouncing…
Why Splicing Is So Important in SMA Treatment
Splicing is the process of removing parts of DNA code. This can occur naturally, resulting in mutated genes which can…
Columnist Explains the Difficulties of Gaming When You Have SMA
Like most young people, our resident SMA columnist Brianna Albers, loves computer games, particularly interactive online games. It was a…
SMA Support UK Uses Information Maps to Help Patients and Caregivers
If you or a family member have recently been diagnosed with spinal muscular atrophy (SMA), one of the first things…