Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to…
Articles by Wendy Henderson
https://www.youtube.com/watch?v=9z4jkn4Wv3w In this video from MoveForwardPT, a physical therapist (PT) from the Children’s National Medical Center…
In this video from Cure SMA taken at the SMA patient-focused drug development meeting with the…
As the muscles in the mouth and throat become weaker in babies and children with spinal muscular atrophy (SMA) it leads…
While living with a chronic illness can be challenging, there are ways that you can make life easier and live a happy…
Documentary filmmaker Gareth Burghes first heard of spinal muscular atrophy (SMA) through his father’s work as a geneticist. He…
Speech-language pathologists (SLPs) or speech-language therapists (SLTs) do much more than help people with speech problems such as stuttering or mispronouncing…
Splicing is the process of removing parts of DNA code. This can occur naturally, resulting in mutated genes which can…
Like most young people, our resident SMA columnist Brianna Albers, loves computer games, particularly interactive online games. It was a…
If you or a family member have recently been diagnosed with spinal muscular atrophy (SMA), one of the first things…