I have called myself a writer for the longest time, and in many ways, I suppose I still do. I am, after all, a writer. But I have long since changed my Twitter bio from “writer” to “storyteller” because “storyteller” is far more reflective of who I am…
Columns
I was diagnosed with spinal muscular atrophy at nine months of age. No one ever knows what SMA is, so I always say it has something to do with my cells and their ability — or, I suppose, inability — to communicate. My brain tells my body to…
Recent Posts
- This SMA Awareness Month, let’s reflect on how far we’ve come
- A lack of accessibility nearly caused me to miss my date with ‘Dracula’
- Combined newborn screening test spots 2 rare diseases
- Remembering the fun-filled summer of ’98 with my teenage caregiver
- Prenatal SMA treatment improves outcomes but may need to continue
