I helped my husband, Randy, pluck raspberries from our bountiful bushes the other evening. Shortly after sampling our red, squishy haul, I removed my Crocs to get ready for a shower. Whoa. My eyeballs popped when I spied what looked like blood on the bottom of my foot.
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Second in a two-part series. Read part one here. “[The] universe demands diversity.” The quote above is from alien scientist Mordin Solus, who’s a character from Mass Effect, a sci-fi video game series by developer BioWare. It’s a simple yet…
When thinking about disability pride — specifically the content I wanted to create for Disability Pride Month — I found myself returning to a quote from “Care Work: Dreaming Disability Justice” by Leah Lakshmi Piepzna-Samarasinha. “[A] core part of disability justice work [is] making the next world, the…
It coaxed out the wildness inside of me. My wheels chomped at gravel with each twist and turn of the riverside trail I was traveling. Acorns were devoured in satisfying bursts and brittle twigs muddled with stone as my tires carried me through a transforming world. This riverside trail, well…
“LET ME KNOW IF YOU NEED ANYTHING!” An usher exclaimed these words at the top of his lungs in the church auditorium while putting his hand on my shoulder. To say this experience was patronizing would be an understatement, but it did provide the catalyst for the perfect rebuttal. Upon…
Parents, teachers, and pet owners routinely witness the unmistakable impact of full moons on all realms of behavior. Insert wolf howl. As a rapidly aging adult, I can vouch for this monthly phenomenon’s continued ability to “scramble the circuits” in every capacity. For some bizarre, unknown…
I know that self-talk is important, including the words we use and our tone of voice. We’re usually trying to look out for ourselves, but more often than not, our good intentions are swallowed by feelings of shame. But it doesn’t matter how many posts I like on Instagram…
For many years, the annual Cure SMA Conference has been bringing the SMA community together to learn and to connect. Throughout its history, the conference has traveled to a variety of locations across the U.S., hosted countless seminars and socials, navigated new virtual platforms, and provided…
Recently, someone I know commented, “Alyssa doesn’t let her disease define her.” I absolutely understood where they were coming from. After all, I have always been determined. I have always been that girl who thrives in a challenge and loves nothing more than being told she can’t do something. (Spoiler…
Sometimes people exclaim, “I never thought I would be doing this a year ago,” to negatively describe an experience. For example, asking for extra help to survive may cause some to think they are stooping to a new and shameful low. Even with all the help I’ve needed my whole…
