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Today is Rare Disease Day
Hey everyone, hope you’re all having a great week!
So today is officially recognized as rare disease day. You can learn more about it and this year’s theme here: https://www.rarediseaseday.org/page/news/theme-2019.
Rare Disease Day provides us a great opportunity to raise awareness about SMA, and to educate people about what it’s like to live with a disability. I just want to encourage everyone to read about this organization, and maybe be encouraged to share your story.
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