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No soup for me.
Australia has recommended Risidiplam for patients with SMA 1, 2 & 3 … if they’re under 18.
That means it’ll be massively subsidised and therefore affordable.
They did the same with Spinraza.
I’m happy as a pig in shit for the young ones but I’m 35 & a rotten mix of absolutely fucking furious, disappointed & worth less (not “worthless” but worth less than others – if I paraglyded into a cliff tomorrow they’d spend 100’s of 1000’s of $$$ to rescue me off a cliff my dumb arse crashed into).
I guess they’ll try again next year but as we know a lot can be lost in a year.
Total kick in the guts.
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