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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 2 replies, 2 voices, and was last updated 3 months, 4 weeks ago by Alyssa Silva.

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    • #22984
      Alyssa Silva
      Keymaster

      Considering I barely know what day it is lately, I can also confirm that I was not aware Easter was already this weekend.

      That being said, are there any toys you’re eyeing for your children that are user-friendly for someone with SMA?

      I came across this awesome wheelchair-accessible playhouse which triggered this thought process of finding SMA-friendly toys to give children on Easter. I would have LOVED something like that playhouse as a kid. Truth be told, I briefly considered buying this for my niece and nephew, so I could play with them!

    • #23077
      DeAnn R
      Keymaster

      That would make a great gift for your niece and nephew! My nieces loved when I would bring them to the park to play in the playhouse. Of course I was stuck outside, so had to make do by “ordering” from the window. It was still fun, but this would allow even more interaction.

    • #23082
      Alyssa Silva
      Keymaster

      You always have such innovative ideas to interact with children! Great ideas, thank you. 🙂

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