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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 2 replies, 2 voices, and was last updated 5 months, 2 weeks ago by DeAnn R.

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      • #19430
        DeAnn R
        Keymaster

        Rolling Like the Waves: SMAdventures in Adaptive Sailing

        Hey everyone!

        In Katie’s latest column, she writes about her adventures in adaptive sailing. This post brought back memories of getting on the water with my family’s pontoon. I don’t know if I would be daring enough to try sailing, but my takeaway from this column is to surround yourself with supportive people. When you do this, it opens up endless possibilities.

        What’s your takeaway from this column? What are some adventures you’ve been on? A hot air balloon ride is on my bucket list.

      • #19473
        Ryan Berhar
        Participant

        When I was little, I went to a fishing event for kids with disabilities a few times. I went on a pontoon boat a couple times. It was pretty fun. I remember one time, however, when some guys literally lifted me while sitting in my chair onto the boat. There was a gap between the boat and the dock. At the time, I didn’t think much of it, because when you’re a little kid you assume adults know what they’re doing. Now that I’m an adult, I realize we’re often dumb. Looking back on it, it was an absolutely horrible idea, and I probably would have drowned if my 200 pound chair (more with me in it) would have been mishandled.

        • #19480
          DeAnn R
          Keymaster

          I always tell people where my seat-belt unhooks, but yup our chairs would certainly be like anchors. Getting on the pontoon would always be the scariest part because we would put a board as a ramp between the dock & boat. Living on the edge!

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