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    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 1 reply, has 2 voices, and was last updated by  Ryan Berhar 3 months, 4 weeks ago.

    • Author
    • #18949
       Kevin Schaefer 

      Hope everyone had a great weekend!

      Here’s Alyssa’s latest column: https://smanewstoday.com/2019/05/17/gratitude-unexpected-ways-healthcare-team-community/.

      Heh, I’ve definitely made jokes about being recognized in hospitals before. It can get annoying, but like Alyssa says here there can be good that stems from this, especially as it pertains to her Spinraza treatments.

      Can you relate to Alyssa’s message here? Do you have any specific takeaways?

    • #18965
       Ryan Berhar 

      I have a very difficult time being in any hospital, regardless of the circumstance. I suppose being there to receive treatment would lessen the dread. Something positive rather than just trying to survive.

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