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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

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      • #20929
        Brianna Albers

        Hi everyone! Hope you all had a great weekend.

        In her latest column, Alyssa talks about her role as the maid of honor in her best friend’s wedding. She was worried that SMA would make her responsibilities difficult. Would she have enough energy to make it through the reception? In the end, she found a balance between rest and activity. Ultimately, she was able to stand next to her best friend during the ceremony.

        Alyssa says that her best friend, Amanda, was supportive, and encouraged Alyssa to prioritize her health in the midst of wedding chaos. It was hard for Alyssa to accept that SMA might impact her ability to be there for Amanda on her special day, but she feels lucky to have such an amazing best friend.

        Have you ever participated in a wedding? What was your experience like?

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