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Time Is Motor Neurons

A father’s perspective: Our journey to finding a treatment

When Quinn, our soon-to-be-born daughter, didn’t make as much movement in the womb as our other 3 children, my wife, Annie, and I thought we had the “chillest” baby in the world. We joked that she was saving up all her energy for when she entered this world kicking and screaming. Quinn was born in August 2018, and she was the most beautiful little girl. Over the first few months, nothing seemed out of the ordinary. In fact, she appeared healthy and had strong upper body strength. But by the time Quinn’s 9-month check-up came around in June, her physical condition started to change.

This topic has 1 reply, 2 voices, and was last updated 1 year ago by Ryan Berhar.

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    • #19102
      Kevin Schaefer

      Hey everyone! Hope you’re all having a great week so far.

      Here’s Kala’s latest column: https://smanewstoday.com/2019/05/28/disabled-characters-fiction/. This is a topic I’m very interested in, and I’ve written about it before as well.

      In terms of whether to make stories about characters with disabilities realistic, or if it’s acceptable to take liberties in fantasy and sci-fi stories, I can see both sides of the spectrum.

      I’m actually working on two graphic novel scripts that feature characters with disabilities. One is a more realistic sci-fi piece about a young woman with SMA who takes part in an experimental artificial intelligence program, and it deals with ableism and dating and disability. The other is a more over-the-top post-apocalyptic comic about a gunslinger who has ALS. It’s in the vein of Mad Max, and it definitely takes liberties and embraces a lot of comic book tropes.

      That said, I can see an argument for both. What matters to me is that the characters are authentic, even if some liberties are taken in regards to their disabilities.

      What do you all think though? Do you have any favorite stories that deal with characters with disabilities?

    • #19115
      Ryan Berhar

      Interesting question. Considering we’re talking about fiction, I think it’s reasonable  to take certain liberties. Readers will understand that this isn’t intended to be an entirely accurate depiction of disability. Obviously, obstacles associated with disability should still be present, though, or else what’s the point?

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