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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 1 reply, 2 voices, and was last updated 10 months, 4 weeks ago by Halsey Blocher.

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    • #20604
      Brianna Albers
      Keymaster

      Happy Tuesday!

      My column for September is about happiness. I’ve been thinking a lot about the topic and how happiness differs from person to person, and even from age to age. For example, as a teenager, I had very specific ideas as to how happiness would look like, ideas that were largely influenced by all the romcoms I grew up with as a kid. Unsurprisingly, those ideas aren’t as applicable now. 

      Of course, I’ll never “move on” from those ideals, not entirely. They’re an integral part of who I am. But over the years I’ve come to embrace new definitions of happiness. They’re not what I imagined growing up, but they’re just as valid. I’d even go so far as to say they’re more valid because they’re specific to me. 

      What does happiness look like to you?

    • #20632
      Halsey Blocher
      Participant

      Oh my gosh, Brianna I love this! All of your movie references are sending my spiraling back into my own childhood fantasies!

      While fantasies are great, I love that you’ve found happiness in your real life too! I think it’s so important to embrace our less than perfect lives, and love them as they are until parts of them start to feel like they might actually be some kind of real life fantasy!

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