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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 1 reply, 2 voices, and was last updated 2 months, 2 weeks ago by Halsey Blocher.

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      • #20604
        Brianna Albers
        Keymaster

        Happy Tuesday!

        My column for September is about happiness. I’ve been thinking a lot about the topic and how happiness differs from person to person, and even from age to age. For example, as a teenager, I had very specific ideas as to how happiness would look like, ideas that were largely influenced by all the romcoms I grew up with as a kid. Unsurprisingly, those ideas aren’t as applicable now. 

        Of course, I’ll never “move on” from those ideals, not entirely. They’re an integral part of who I am. But over the years I’ve come to embrace new definitions of happiness. They’re not what I imagined growing up, but they’re just as valid. I’d even go so far as to say they’re more valid because they’re specific to me. 

        What does happiness look like to you?

      • #20632
        Halsey Blocher
        Participant

        Oh my gosh, Brianna I love this! All of your movie references are sending my spiraling back into my own childhood fantasies!

        While fantasies are great, I love that you’ve found happiness in your real life too! I think it’s so important to embrace our less than perfect lives, and love them as they are until parts of them start to feel like they might actually be some kind of real life fantasy!

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