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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 2 replies, 3 voices, and was last updated 1 month, 1 week ago by Halsey Blocher.

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      Posts
      • #21119
        DeAnn R
        Keymaster

        With SMA the most minute changes bring new challenges. One of those changes is the changing of seasons and everything that comes with it. Much like Halsey describes in her latest column, I have difficulty adjusting to bulky clothing. Not only are they less comfortable they make limitations even more of a reality. Despite that along with other obstacles, Halsey doesn’t let it stop her from enjoying activities like going to a pumpkin patch with her family. It may just take a little more effort and support, but she gets it done. What adjustments do you make to continue enjoying activities?

      • #21150
        Ryan Berhar
        Participant

        Driving on rough terrain like gravel is always a challenge, but everything is that much tougher in the cold.

        • #21151
          Halsey Blocher
          Participant

          I’m pretty sure almost any surface is better than gravel!

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