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  • Columnist Writes About the Contradictory Nature of SMA

    Posted by Community Member on August 3, 2021 at 11:00 am

    Happy August, and happy SMA Awareness Month! To kick things off, I wrote a column about contradictions — specifically the contradictions that comprise SMA. I would love to know what you think! You can read the column here.

    What are some contradictions you’ve experienced because of life with SMA?

    Community Member replied 2 Members · 2 Replies
  • 2 Replies
  • Community Member

    Member

    SMA breaks me, but it always puts me back together, in ways I would never have expected.

    That hit me right in the feels.

    I do wonder sometimes what an abled-body (able-bodied?) me would have been like. I can imagine it being amazing (I would feel invincible). But also I can see missing out on experiences from this life—people, interests, hobbies. It’s possible that despite SMA I’m happier than my hypothetical counterpart. I guess I’ll never really know.

    I will say that if I could magically heal myself I def would, but I understand why someone might not—it’s like changing a core part of yourself. It’s weird to think about.

    Superb writing, and spot on.

    • Community Member

      Member

      Off-topic but these blockquotes seem to have double styling applied. I’m not sure how the site is managed/who has authority to work on it, but I can help fix this if that’s something that’s doable.

      Blockquote example

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