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The importance of newborn screening for SMA

Rory and Carolyn met in seminary, fell in love, and got married. They decided to hold off on starting their own family while they settled into their first jobs in North Dakota. After a few years, they moved to Minnesota, where Rory accepted a job as a minister, and Carolyn enrolled in a hospital chaplain residency program. At the time, they did not know how important the decision to move would be for their future family. When they moved, neither North Dakota nor Minnesota had SMA on their newborn screening panel. It wasn’t until March 2018 that Minnesota adopted and implemented newborn screening for SMA, and then several months later, in 2018, Rory and Carolyn’s only son Edan was born.


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    • #24794
      Alyssa Silva
      Keymaster

      Hahaha ok, I know the title of this forum sounds so bizarre. That’s because, quite frankly, it is. Even while writing the actual column I found it so strange that I was writing 600 words about celery juice.

      Alas, here is my latest piece! I’m currently two weeks into my juicing days, and in the last week, I have begun to notice some positive changes. But, this column has less to do with the actual benefits of celery juice and more to do with the message behind it.

      In the beginning, I was ready to give up. Celery juice is GROSS. But then my friend said something that really put things in perspective for me. It gave me the determination to keep at it, and it soon taught me a valuable lesson.

      I’ll let you read it for yourself! But, tell me, do you find lessons in unexpected ways? If so, how has it impacted your life with SMA?

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