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    Planes, Trains, & Accessible Travel With SMA

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    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 1 reply, has 2 voices, and was last updated by  Ryan Berhar 3 months, 3 weeks ago.

    • Author
      Posts
    • #19500
       Brianna Albers 
      Keymaster

      Happy Monday, everyone!

      Alyssa’s latest column is up. In “Curiosity and Sweet Moments Build Special Bonds,” Alyssa talks about her 8-year-old cousin, Jackson, who knows about her SMA — to a certain extent — but doesn’t let it affect his relationship with her. Their bond has changed over the years, but Alyssa says that, despite his age, Jackson never fails to show her compassion and empathy.

      I love spending time with kids. It can be exhausting, especially for an introvert like myself, but it’s also refreshing. Kids can tell there’s something “off” about me, but they don’t know the specifics, and what’s more, they don’t care. Like Alyssa says in her column, they see my wheelchair as a toy, something to covet, as opposed to a mobility assistance device that’s more or less taboo. I wish adults were more like kids when it comes to interacting with disabled people!

      Do you have kids in your life that you enjoy interacting with?

    • #19540
       Ryan Berhar 
      Keymaster

      I’m the oldest of my siblings and cousins, so all of them. Since they’ve all been around me since they were born, my condition isn’t foreign to them, which is nice.

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