Day 14 of #31DaysofSMA: Having Such a Tightknit Community Makes All the DifferenceAmber Joi-Watkins’s daughter, Céline, was diagnosed with SMA type 1 in December 2018, when she was 6 months old.
Amber has been in touch with so many families and individuals affected by SMA virtually, and she describes this bond as… “indescribable.”
However, the power of seeing these same people in the flesh is unmatched, and that’s what happened at this year’s Cure SMA Conference.
“I felt a special sense of pride in the SMA community and the way in which we are empowered together.”
Amber, thanks so much for sharing your experience with us!
Now back to our SMA community, did you go to Cure SMA? How was your experience?
Click here to read the rest of Amber and Céline’s story and find out more about their experience at this year’s Cure SMA Conference.
SMA News Today’s 31 Days of SMA campaign will publish one story per day for SMA Awareness Month in August. Follow us on Facebook and Instagram for more stories like this, using the hashtag #31DaysofSMA, or read the full series.