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    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

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  • This topic contains 2 replies, has 2 voices, and was last updated by  Kevin Schaefer 1 year, 6 months ago.

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    • #11167
       Kevin Schaefer 
      Keymaster

      Hello everyone. I wanted to repost my column from this week here. I wrote about coping with the mental and emotional effects of living with SMA. This is just from my perspective, and I wrote about what helped me personally get through a rough time in my life. However, I hope that it might spark a discussion on this subject. I know it’s not easy to talk about, but nonetheless we all have had to deal with the hardships of SMA. Let me know your thoughts here.

      Here is my column: https://smanewstoday.com/2018/01/30/sma-mental-defense-3-things-that-helped-me-combat-emotional-tolls/

       

    • #11244
       Kelly Miller 
      Participant

      Very well written Kevin. A lot of what you said is things I’ve learned along the way also. I went to counseling when I was in college and it definitely helped me over a hump of feeling dejected about my future as an employee and spouse. I’ve since had a career and celebrate 20 years of marriage. Having these things be successful has not stopped me from having bouts of anxiety & depression. The anxiety usually comes in relation to medical issues. The depression seems to come without a reason in particular. I’ve recently started taking an antidepressant and my doctor thinks this will help me. She says that as an individual with a very severe, chronic disability, I have to face lots of situations that can cause depression. I didn’t want to take it because I always felt like I was stronger than that but I realized that we all need a little help in one form or another. There’s no shame in asking for help!

      • #11246
         Kevin Schaefer 
        Keymaster

        Thanks for commenting Kelly! Yeah I think it’s an important topic to discuss, even though it’s difficult. For me, acquiring caregivers helped tremendously. But even when I’m doing well, I think it’s important for me to continually apply the methods that I talk about in this article. It’s easy for me to get stressed out if I’m not careful, and I have to make sure to give myself downtime and to not overwhelm myself.

        Thanks again for contributing! Great discussion.

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