Do you have trouble accepting new medical equipment?
Recently, I had to start using a voice amplifier more often than normal. Between my NJ feeding tube and general weakness, my voice has been quieter and sometimes nonexistent altogether. So the amplifier helps when I have Zoom meetings and friends over.
I hate the fact that I have to use it. I know this sounds crazy, but I just feel as though new medical equipment signifies weakness. It means SMA is progressing. I wrote a column about this recently and how I’m unwilling to accept new equipment for this reason.
I know it’s silly, but do you ever feel that way too? SMA has robbed us of enough. Having to lose even more independence stings.