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Does disability-specific recognition matter?
Does specific recognition matter when it comes to your disability?
What I mean is, is it important to make it known I have SMA versus another condition like MS or CP? Most of the time people have no clue what I have. Even when I tell them, often it gets confused with other diseases. Most often I don’t correct them, even though there are vast differences.
When it gets confused at the doctor’s office or even in the hospital, I am sure to point it out if they get it wrong. When it comes to treatments, I can’t afford a mix-up.
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