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    Planes, Trains, & Accessible Travel With SMA

    Talk to your doctor to determine if you or your child is fit to travel.

    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 1 reply, has 2 voices, and was last updated by  Kevin Schaefer 1 week, 3 days ago.

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    • #20533
       DeAnn R 
      Keymaster

      Happy Tuesday everyone!

      Check out the latest episode of “Dose of DeAnn” here. This one is slightly different from my usual videos, as I do a book review here. For anyone who has followed SMA News Today for a while, you know that we’re pretty big fans of author and nonprofit executive Shane Burcaw. His latest book, titled “Strangers Assume my Girlfriend is my Nurse,” came out recently, and I had a chance to check it out.

      I talk about some of the stories that stuck out to me, and I discuss my biggest takeaways from this book. This memoir explores Shane’s relationship with his now fiancé Hannah Aylward, and it offers some great insight into inter-abled relationships.

      Have you read this book yet? If so, I’d love to hear your thoughts as well. We have a book club discussion going on here in the forums, and I’d love for you to join. Thanks for watching!

    • #20551
       Kevin Schaefer 
      Keymaster

      Great video! While I still prefer physical books, digital versions do make things significantly easier. I like reading on my phone when I’m in the car or waiting for doctor appointments, and I read a lot on my computer.

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