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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 1 reply, 2 voices, and was last updated 2 months, 3 weeks ago by Kevin Schaefer.

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      • #20533
        DeAnn R
        Keymaster

        Happy Tuesday everyone!

        Check out the latest episode of “Dose of DeAnn” here. This one is slightly different from my usual videos, as I do a book review here. For anyone who has followed SMA News Today for a while, you know that we’re pretty big fans of author and nonprofit executive Shane Burcaw. His latest book, titled “Strangers Assume my Girlfriend is my Nurse,” came out recently, and I had a chance to check it out.

        I talk about some of the stories that stuck out to me, and I discuss my biggest takeaways from this book. This memoir explores Shane’s relationship with his now fiancé Hannah Aylward, and it offers some great insight into inter-abled relationships.

        Have you read this book yet? If so, I’d love to hear your thoughts as well. We have a book club discussion going on here in the forums, and I’d love for you to join. Thanks for watching!

      • #20551
        Kevin Schaefer
        Keymaster

        Great video! While I still prefer physical books, digital versions do make things significantly easier. I like reading on my phone when I’m in the car or waiting for doctor appointments, and I read a lot on my computer.

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