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This topic contains 3 replies, has 4 voices, and was last updated by  Tracy Odell 1 month ago.

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  • #19374
     Ryan Berhar 

    Recently, my left ear has been a bit dry and irritated. Last night, I couldn’t really even sleep on it, as it was too painful. I’m guessing this has happened because I lay on it so frequently. Has anyone dealt with this? Is there any sort of lotion or something that fixed it?

  • #19375
     Katie Napiwocki 

    Hey, Ryan!  Yes!  I can definitely relate to this.  I get flare-ups of redness, pain and dryness whenever my sleeping position has been consistently exerting too much pressure on the outer curve of my ear. I don’t know of any topical treatment (although I’m sure a healthcare provider could recommend something), but what’s worked for me is repositioning in a way that tilts my head differently to relieve the pressure.  I know sleep positions can be challenging for us with SMA.  I’m not able to lay on my back at all, as my breathing feels too shallow.  Sometimes the strap on my cpap mask irritates my ears, too.  I’ve been told there are special pillows to accommodate masks for cpap & bipap, but I haven’t looked into it yet.  Maybe a different pillow like that could help relieve the pressure?  I hope you can find a solution soon for more restful nights!

  • #19377
     Halsey Blocher 

    I think I’ve mentioned this before, but sometimes I roll up a wash cloth or hand towel and wedge the roll between my forehead and pillow to lift some of the weight of my head off of my ear.

  • #19378
     Tracy Odell 

    I have used a thin towel rolled into a rolled donut shape so my ear can “float” in its hollow centre, off of the mattress. You will need to experiment with different sizes and thicknesses until you come up with the comfort zone that works for you.

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