Evrysdi side effects
Hi, I just joined this forum today so hello and I hope you can help with a problem I’ve been having since I started Evrysdi. I have SMA type 2 and I am 43 years old with a severe scoliosis and no spinal fusion.
I started Evrysdi or Risdiplam as it is called over here in the UK around three weeks ago and everything was going fine until the second week when I started getting some GI issues. I’m finding that food is being digested very quickly and I am getting diarrhoea like symptoms even though I’m not getting diarrhoea itself. I feel hungry every two hours as I feel very weak and almost like I’m going to faint.
Has anyone else had any similar symptoms whilst taking Evrysdi and are they temporary or is this a permanent side-effect?
One thing that I haven’t been doing is taking it straight after a meal as I have been taking the medication a couple of hours after eating. Would that make any difference?
Any help would be greatly appreciated.