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Evrysdi Update
I finally met with a neurologist who’s familiar with SMA! They’re going to submit the forms to insurance re: Evrysdi (risdiplam) and get back to me. I’m so happy!
Has anyone been denied by insurance so far?
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3 Replies
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My experience is that Insurance typically denies coverage initially. Your doctor then appeals. Insurance usually then approves.
Even with approval, your out-of-pocket/copay may still be astronomical. No worries though, Genentech can connect you with copay assistance providers, if needed. This may bring your actual copay to $0, or nearly $0.
Get to know your PAL at Genentech. They will be a tremendous help in this somewhat scary process.
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I received a letter saying it’s approved for me. No denial. I was on Spinraza, so don’t know if that makes a difference. Glad to hear you’re making progress!
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I was approved by Medicare within about ten days. If it makes any difference, I was not on Spinraza previously.
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