• greg-sealey

    December 11, 2020 at 7:51 am

    My experience is that Insurance typically denies coverage initially. Your doctor then appeals.  Insurance usually then approves.

    Even with approval, your out-of-pocket/copay may still be astronomical.  No worries though, Genentech can connect you with copay assistance providers, if needed.  This may bring your actual copay to $0, or nearly $0.

    Get to know your PAL at Genentech. They will be a tremendous help in this somewhat scary process.

  • deann-r

    December 11, 2020 at 9:57 am

    I received a letter saying it’s approved for me.  No denial.  I was on Spinraza, so don’t know if that makes a difference.  Glad to hear you’re making progress!

  • yvette-haas

    December 11, 2020 at 11:55 am

    I was approved by Medicare within about ten days. If it makes any difference, I was not on Spinraza previously.

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