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    Planes, Trains, & Accessible Travel With SMA

    Talk to your doctor to determine if you or your child is fit to travel.

    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 2 replies, has 3 voices, and was last updated by  Halsey Blocher 1 month, 3 weeks ago.

    • Author
    • #19583
       Kevin Schaefer 

      Howdy everyone!

      As I write this, my caregiver Randy and I are sitting in an outdoor bar at the Disneyland hotel. We’re listening to a pair of musicians playing Honolulu songs, and the weather here is perfect.

      It’s serene now, but we did encounter some trouble yesterday. Though our two flights went pretty smoothly, I wish I could say that my chair left the airport unscathed. Unfortunately, the airline folks did do some damage to it.

      Despite our best efforts to protect each piece, someone managed to drop the chair on its side. Fortunately, it’s still fully functional, but the right armrest is pretty bent. I can drive fine, but I can’t get my tray on. This makes it difficult for me to use my phone, computer, or read. Granted, once the conference starts tomorrow, I’ll be too busy to do those things anyway, but it’s still frustrating.

      Anyhow, I’m here now, and I’m enjoying myself. I’ve already run into friends, and I look forward to meeting a lot of adults with SMA all weekend.

      Also, I went to Star Wars: Galaxy’s Edge last night, and I bought a lightsaber! Just look at this beauty…

      [caption id="attachment_19584" align="alignnone" width="300"] Contribute by Kevin Schaefer[/caption]

      I just wanted to give everyone an update, before the conference chaos ensues. Hope everyone has a great weekend! Talk to you all next week.

    • #19592
       DeAnn R 

      Sorry to hear about the mishandling of your chair. Unfortunately an all too common occurrence I hear. One more reason it would be nice to stay in our chairs for travel. Glad it wasn’t worse though.

      Nothing goes better with a robotic arm than a light saber! Sounds like you’re having a great time.

    • #19594
       Halsey Blocher 

      Wish I was there! I can’t wait to hear about the rest of you Disney/conference adventures! Hopefully nothing else happens to your chair and you can get it fixed easily when you get home!

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