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Time Is Motor Neurons

A father’s perspective: Our journey to finding a treatment

When Quinn, our soon-to-be-born daughter, didn’t make as much movement in the womb as our other 3 children, my wife, Annie, and I thought we had the “chillest” baby in the world. We joked that she was saving up all her energy for when she entered this world kicking and screaming. Quinn was born in August 2018, and she was the most beautiful little girl. Over the first few months, nothing seemed out of the ordinary. In fact, she appeared healthy and had strong upper body strength. But by the time Quinn’s 9-month check-up came around in June, her physical condition started to change.


This topic has 4 replies, 3 voices, and was last updated 1 month, 3 weeks ago by Halsey Blocher.

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    • #22982
      Alyssa Silva
      Keymaster

      For many of us, being isolated often means relying on others to bring us essential items from the outside world such as groceries, toiletries, medications, etc. Suffice to say, it has been a little challenging at times to get things when we need them.

      My family has been using Peapod and Amazon, as well as a select few family members to bring us our necessities. Even so, we are aware that— even though we don’t come in physical contact with them— they can bring germs to us via the items. So we developed a little system to hopefully mitigate any contamination we may come in contact with.

      1. Every delivery is left in the garage as to practice social distancing.
      2. For perishables, my dad gets the items wearing gloves, Lysol wipes every single one, then puts them in the fridge.
      3. Non-perishables are then dumped from the bag they came in and into a box in my office for a few days.
      4. After a few days, we Lysol wipe the items down and use as necessary.

      Do you guys have a system for bringing in outside goods? I know this virus is beyond our control, but at least I know we’re doing the best we can. Somehow, that brings me comfort.

    • #22999
      Halsey Blocher
      Participant

      We are definitely being cautious about everything that comes into our house right now. We’re spraying every box with Lysol, and letting it sit in the foyer for a day before opening it. Then we spray the contents with Lysol. Basically just using a ridiculous amount of Lysol.

    • #23018
      Alyssa Silva
      Keymaster

      At which point do we start Lysoling the Lysol? 🙂

    • #23033
      Lupa F
      Participant

      For perishables, I hope nobody is putting lysol on fruits and vegetables. They’re porous so anything like that seeps into them (which is why you never wash them with soap either).

    • #23035
      Halsey Blocher
      Participant

      Alyssa, I should probably start doing that. 🤯

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