Having a High Quality of Life While Living With SMA
Hey everyone! Hope you’re all having a great week so far.
Check out my latest column here. I recently had a couple friends on the SMA News Today Podcast, and we spent a lot of time talking about their late son Carson. Carson was a friend of mine, and it was cathartic for me to talk with his parents about his life.
Among other things, we talked about Carson’s quality of life. His parents decided early on that they didn’t want his life to be dominated by doctor’s appointments and medications. I think there’s a lesson to glean from this. In the SMA community, we spend so much time focusing on our physical health. In doing so though, we often neglect our other needs. With this column, I wanted to emphasize that our quality of life is just as important as our physical well-being.
Can you relate to this notion? Do you have any takeaways?
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