-
Hello
I’m new to this forum, so I’d like to introduce myself. I’m a retired Speech therapist and a mother and grandmother. I was diagnosed at 20 years old with SMA 3. I always knew something was wrong with me but doctors and adults in my life didn’t take me seriously. I felt vindicated when my doctor said he knew what was causing my symptoms of muscle weakness, but devastated to learn it was progressive and there wasn’t a treatment or cure.
Thirty years later, I started receiving Spinraza. I use a walker inside and a scooter when I’m out. I’m thankful for a treatment and for groups and forums that provide support.
Log in to reply.