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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 2 replies, 2 voices, and was last updated 2 years ago by Michael Morale.

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    • #13299
      Michael Morale
      Keymaster

      I was born in Texas in 1965, and I’ve only left Texas three times in my lifetime. I went to California twice and I went to Louisiana once. I know that many of us with SMA have troubles regulating our body temperatures. I have always been a warm weather person, because I tend to cramp up and my muscles tighten in cold weather. My hands become useless in cold weather, but now that I am retired, colder weather isn’t as much of a concern as it use to be because I tend to stay in my house more. I also know that many of you live on the East Coast where it tends to be much colder than it is here in Texas.

      I’m curious to see how many of you prefer hot weather versus cold weather?

    • #13319
      DeAnn R
      Keymaster

      I’m from Minnesota.  Basically I hibernate from October through April.  If I was able I would move in a heartbeat.  Maybe become one of those snowbirds who travel South for the winter.  Just not feasible.

    • #13324
      Michael Morale
      Keymaster

      I fully understand. I despise being cold.

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