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How do you manage unreliable transportation
Living in a relatively small town, transportation has always been challenging for wheelchair users. Public transportation can be an option if you don’t need a ride after business hours, on weekends or holidays. Forget having a social life. I guess they do run on Saturday provided you schedule in advance. You might as well plan everything in advance as an extra $1 is added to same day reservations. Have a medical appointment out of town? Good luck with that.
Fortunately, an accessible vehicle has always been available through my parents. After my dad passed away in 2015, we traded in our full-size van with mechanical lift for a 2010 minivan with a rear fold out ramp. It has served us well over the last 7 years apart from needing to replace the transmission 2 years ago.
Over the past couple months, the van occasionally won’t start. It sounds like it’s trying but just won’t rev up all the way. Later, from an hour to a day, it starts just fine. Two different mechanics have looked at it, but since it hasn’t acted up while they’ve had it, they can’t diagnose the problem.
Although it has always started when I’ve been with, I would be in a pickle if it didn’t. That means I’m only going somewhere when I can have a backup option. Basically Mon-Fri no later than 5. Yay! It makes Mom nervous driving it too, but at least if she gets stranded again, she can hitch a ride with my sister or a friend.Here’s my real dilemma. At the end of October, I have my annual neurology visit and physical therapy assessment to continue with Evrysdi. Seven transportation companies have already declined as my insurance doesn’t reimburse enough for long trips like this, they don’t have drivers or they choose not to return a phone call. Even though I don’t like to be a bother I can probably have a friend take a day off to drive the unreliable van. Do I love the idea? No. Do I have other options? You tell me.
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