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I Want To Help A Local Little Boy With SMA Receive ZolgenSMA…But How?
My mom sent me a link to a news article from our hometown about a 19 month old boy who is being denied ZolgenSMA by their insurance. I’ll link it here: https://www.14news.com/2019/07/29/insurance-denies-child-million-drug/
It makes me so freaking mad and sad. Like I’ve pretty much accepted the fact that I will not be able to receive ZolgenSMA or Spinraza and I’m okay with that…mostly. But whenever I see little kids like Jackson getting denied treatment, it makes me wanna punch a wall – not that it’ll do anything to the wall. When I can’t punch the wall, I wanna cry.
I wanna help him so bad. But I don’t know how. I mean, they set up a GoFundMe account but I can’t afford that. I wanna reach out to them and connect since they live in the same city as me…
I kinda wanna start like some kind of bake sale or something like the ice bucket challenge for ALS but I don’t know what or how.
Any advice, tips, or ideas?
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