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    Planes, Trains, & Accessible Travel With SMA

    Talk to your doctor to determine if you or your child is fit to travel.

    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 0 replies, has 1 voice, and was last updated by  Kevin Schaefer 8 months, 1 week ago.

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    • #16590
       Kevin Schaefer 

      Hey everyone, here’s my latest column: https://smanewstoday.com/2019/01/15/new-airline-law-flying-disabilities/?amp.

      I wrote about the new federal law in the United States which requires major airlines to report lost or damaged wheelchairs and scooters. This is a huge step toward improving flight accommodations for wheelchair-users, but I also suggested some tips for how the Federal Aviation Administration can expand on this law.

      I’ve only flown once in my life, and I barely remember it. This summer however, I am going to go for it and flying with my parents and caregiver to Anaheim, California for the 2019 Cure SMA conference, which I mention in the column. I’m definitely anxious about it, but I’m willing to take the risk. I’m really trying to make it to the conference every year from here on. Hopefully someone will take note of the suggestions I give in this column. I also know other disability advocates who are pushing for airlines to allow wheelchair-users to remain in their chairs during flights. I’m hopeful that this will happen in the future.

      For those of you who do fly, what tips do you have?

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