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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 0 replies, 1 voice, and was last updated 1 year, 6 months ago by Kevin Schaefer.

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      Kevin Schaefer
      Keymaster

      Hey everyone, here’s my latest column: https://smanewstoday.com/2019/01/15/new-airline-law-flying-disabilities/?amp.

      I wrote about the new federal law in the United States which requires major airlines to report lost or damaged wheelchairs and scooters. This is a huge step toward improving flight accommodations for wheelchair-users, but I also suggested some tips for how the Federal Aviation Administration can expand on this law.

      I’ve only flown once in my life, and I barely remember it. This summer however, I am going to go for it and flying with my parents and caregiver to Anaheim, California for the 2019 Cure SMA conference, which I mention in the column. I’m definitely anxious about it, but I’m willing to take the risk. I’m really trying to make it to the conference every year from here on. Hopefully someone will take note of the suggestions I give in this column. I also know other disability advocates who are pushing for airlines to allow wheelchair-users to remain in their chairs during flights. I’m hopeful that this will happen in the future.

      For those of you who do fly, what tips do you have?

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