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    Celebrating “Inchstones” in SMA

    A mother’s perspective: How our family measures progress since treatment

    You couldn’t picture a happier or more beautiful little boy than the one who came into our lives on January 4, 2019. Little did we know, this bundle of joy we named Slade was just starting a journey that was going to change our family’s life.

    About 2 weeks after Slade was born we started to notice that he appeared to be a bit floppy. Our pediatrician chalked it up to him being a calm baby and told us he’d eventually grow out of it. With my husband being a chiropractor and my background in early childhood development, we knew something was wrong–we could just feel it.

  • This topic has 3 replies, 3 voices, and was last updated 6 months ago by Ryan Berhar.

    • Author
      • #20336
        Ryan Berhar

        What are some good questions to ask when interviewing a potential caregiver? What are some to avoid? Do you have tips in general? Thanks.

      • #20338
        Halsey Blocher

        One of things I like to ask is if they have heard of SMA and do they know anything about any of the machines we use. It’s fine if they don’t but it’s nice to know how much we’ll need to teach them. I also like to ask some questions about there lives outside of work to start building a personal connection. Things like their kids, pets, or interests/hobbies. Also, if it at any point during an interview they say something that raises a red flag for you, pay attention to it. Discuss it with someone you trust, and think about it carefully before you decide to hire someone.

      • #20339
        DeAnn R

        Interviewing has never been my forte. My best advice though is to go with your gut. If you don’t have good rapport with them right off the bat they can be difficult to work with. I tend to talk through my routine and give ample opportunity to ask questions. Many people don’t interview in their homes, but I like to so they can get an idea of what they’re getting into. I like to look at their work history too. Partly to see if they have experience but also to see if they’re job hoppers.

      • #20355
        Ryan Berhar


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