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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic contains 3 replies, has 3 voices, and was last updated by  Ryan Berhar 2 months, 3 weeks ago.

    • Author
    • #20336
       Ryan Berhar 

      What are some good questions to ask when interviewing a potential caregiver? What are some to avoid? Do you have tips in general? Thanks.

    • #20338
       Halsey Blocher 

      One of things I like to ask is if they have heard of SMA and do they know anything about any of the machines we use. It’s fine if they don’t but it’s nice to know how much we’ll need to teach them. I also like to ask some questions about there lives outside of work to start building a personal connection. Things like their kids, pets, or interests/hobbies. Also, if it at any point during an interview they say something that raises a red flag for you, pay attention to it. Discuss it with someone you trust, and think about it carefully before you decide to hire someone.

    • #20339
       DeAnn R 

      Interviewing has never been my forte. My best advice though is to go with your gut. If you don’t have good rapport with them right off the bat they can be difficult to work with. I tend to talk through my routine and give ample opportunity to ask questions. Many people don’t interview in their homes, but I like to so they can get an idea of what they’re getting into. I like to look at their work history too. Partly to see if they have experience but also to see if they’re job hoppers.

    • #20355
       Ryan Berhar 


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