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The importance of newborn screening for SMA

Rory and Carolyn met in seminary, fell in love, and got married. They decided to hold off on starting their own family while they settled into their first jobs in North Dakota. After a few years, they moved to Minnesota, where Rory accepted a job as a minister, and Carolyn enrolled in a hospital chaplain residency program. At the time, they did not know how important the decision to move would be for their future family. When they moved, neither North Dakota nor Minnesota had SMA on their newborn screening panel. It wasn’t until March 2018 that Minnesota adopted and implemented newborn screening for SMA, and then several months later, in 2018, Rory and Carolyn’s only son Edan was born.


This topic has 3 replies, 3 voices, and was last updated 2 years ago by DeAnn R.

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    • #13885
      Ryan Berhar
      Keymaster

      I acquired my JACO robotic arm two days ago, and it has changed my life already. I can get drinks for myself, and even make coffee. I can also meet some of my medical needs now, like suctioning. I can open doors. Does anyone else besides Kevin have one? I think it would really help a lot of you!

    • #13886
      Kevin Schaefer
      Keymaster

      That’s great man! I’m really excited for you!

      Eating and drinking are definitely huge. What are some other things that you’re using it for? I’m glad to welcome you to the Iron Man club.

    • #13891
      DeAnn R
      Keymaster

      Awesome!

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