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Time Is Motor Neurons

A father’s perspective: Our journey to finding a treatment

When Quinn, our soon-to-be-born daughter, didn’t make as much movement in the womb as our other 3 children, my wife, Annie, and I thought we had the “chillest” baby in the world. We joked that she was saving up all her energy for when she entered this world kicking and screaming. Quinn was born in August 2018, and she was the most beautiful little girl. Over the first few months, nothing seemed out of the ordinary. In fact, she appeared healthy and had strong upper body strength. But by the time Quinn’s 9-month check-up came around in June, her physical condition started to change.


This topic has 6 replies, 3 voices, and was last updated 1 year, 8 months ago by Ryan Berhar.

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    • #14463
      Ryan Berhar
      Keymaster

       

      In this video, I give a tutorial on how the JACO robotic arm works. Let me know if you have any questions.

    • #14469
      Kevin Schaefer
      Keymaster

      Thanks for sharing Ryan. Yeah it becomes even easier to use the more you practice.

      It was interesting watching too how your arm strength is. You actually have a little more ability than I do. I can’t lift or move my arm at all. The most I can do with it is move my hand some across my tray and operate my joystick and control switches. It’s just interesting.

      • #14506
        Ryan Berhar
        Keymaster

        That’s how my left arm is. I can’t move it at all. My right arm still has some ability left.

        • #14507
          Kevin Schaefer
          Keymaster

          Gotcha. Yeah my ability in my right arm lasted a little longer than my left. That’s my driving hand, so it gets more use.

    • #14489
      DeAnn R
      Keymaster

      Thanks for showing is that!  I know for myself it seems like it could be intimidating, but your video helps a lot.  Sounds like the company has been really great to work with.  Did they come to you or did you need to go to them?

      • #14493
        Kevin Schaefer
        Keymaster

        DeAnn, Kinova really is a fantastic company to work with. They are based in Canada, but they have technicians in the U.S. I’d recommend reaching out to them and setting up an appointment. They can bring you a prototype to try out and see if it’s a good fit for you. Email me and I’ll give you a contact.

      • #14509
        Ryan Berhar
        Keymaster

        Glad to help. Once I got in touch with the right person, he came to my home in Oregon within the week. Kevin and I would be happy to connect you if you’re interested.

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