Rory and Carolyn met in seminary, fell in love, and got married. They decided to hold off on starting their own family while they settled into their first jobs in North Dakota. After a few years, they moved to Minnesota, where Rory accepted a job as a minister, and Carolyn enrolled in a hospital chaplain residency program. At the time, they did not know how important the decision to move would be for their future family. When they moved, neither North Dakota nor Minnesota had SMA on their newborn screening panel. It wasn’t until March 2018 that Minnesota adopted and implemented newborn screening for SMA, and then several months later, in 2018, Rory and Carolyn’s only son Edan was born.
Thanks for sharing Ryan. Yeah it becomes even easier to use the more you practice.
It was interesting watching too how your arm strength is. You actually have a little more ability than I do. I can’t lift or move my arm at all. The most I can do with it is move my hand some across my tray and operate my joystick and control switches. It’s just interesting.
Thanks for showing is that! I know for myself it seems like it could be intimidating, but your video helps a lot. Sounds like the company has been really great to work with. Did they come to you or did you need to go to them?
DeAnn, Kinova really is a fantastic company to work with. They are based in Canada, but they have technicians in the U.S. I’d recommend reaching out to them and setting up an appointment. They can bring you a prototype to try out and see if it’s a good fit for you. Email me and I’ll give you a contact.
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