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  • lupa-f

    October 20, 2020 at 8:14 am

    I’m skeptical of any muscle targeted treatments having any lasting effects because SMA is not a muscle disease, it’s a neurological disease. If it were a muscle disease there are things already available that help build muscle like steroids that should help, but they don’t.

    If they find a way to help regenerate motor neurons that would certainly be effective, but it doesn’t seem like there’s anything close on that front.

  • pamela-muhammad

    October 20, 2020 at 10:35 pm

    I am hopeful always because that is my nature. But I don’t want anything that is painful or has too many dangerous side effects, if th that’s  the case I would rather just deal with SMA. But I am open minded. Thank you for sharing.

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