Hey Brianna –
Sorry you’re dealing with this. From my experience, not with Spinraza, but for the two power wheelchairs I’ve acquired through insurance, the appeal process is not effective. They usually just drag it out with what seems like an objective to beat you (mentally) into submission. And the longer they can deny or delay your request, the better it is for them financially. That may sound cynical, but it is also reality.
You should have an option with the denial for a peer to peer discussion. For my insurance, United Health Care, this process MUST be initiated prior to an appeal and has a shorter window. Like for me, my appeal could be submitted within 180 days. The peer to peer window was 21. This would be between your neurologist and the insurance company. And if you start the appeal process, it may void the peer to peer option.
Check to see if this option is still available and I hope it works out for you.