SMA News Forums Forums Our Community Adults ​With​ ​SMA Motivation Monday: Employment

  • rachel-markley

    October 21, 2019 at 11:24 am

    Work is a huge part of my daily motivation. It is hard to overcome the fatigue and the general challenges associated with navigating SMA and work (EX: a 2.5 hour wheelchair clinic this morning), but 98% of the time it’s worth it!

    • kevin-schaefer

      October 21, 2019 at 1:54 pm

      Totally understand the fatigue aspect. Spinraza has helped a lot in this regard, but I still have to be careful not to burn myself out. But like you, I find that the joys of working outweigh the negative aspects.

  • halsey-blocher

    October 21, 2019 at 9:44 pm

    Both my job here and my volunteer work are really important to me. Having productive things to is really fulfilling.

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