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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 6 replies, 5 voices, and was last updated 4 months, 4 weeks ago by Kevin Schaefer.

    • Author
      • #19682
        Kevin Schaefer

        Hey everyone! Hope you all had a great weekend! I’m finally getting back to my normal routine. I love traveling, but jet-lag can really mess me up.

        I’m trying something new here. To kick off each week, I want to do Motivation Mondays. Motivation Monday is a popular social media hashtag, and I think it’s something we can implement here. This article in Psychology Today provides a great definition of motivation. Also, read my weekly column “Embracing My Inner Alien.” I often write about the things that motivate me.

        To kick off these discussions, I wanted to talk about the source of motivation. This will really vary from person to person.

        What is it that motivates you? What’s the source of your motivation?

        I’d love to hear everyone’s thoughts on this. Thanks everyone!

      • #19699

        Hi Kevin 🙂

        The one and only thing that motivate me is my wife 🙂

        We had a wonderful  journey to Bergen this weekend. Travel my own country (norway), 8 hours by train each way hehehe.

        two pics of the trip 🙂




        • #19701
          Kevin Schaefer

          That’s great Even! Sounds like a lot of fun.

          How long have you and your wife been together?

      • #19707
        Ryan Berhar

        I’m motivated very heavily by my faith. There are other things too though. I’m motivated to move into my own home, and have my own family. I’m also motivated to become a pro chess player.

      • #19711
        Halsey Blocher

        This is a great idea Kevin! Like Ryan, faith is a really big factor in what motivates me. I try very hard to live every minute of my life for Christ, and knowing that He is always with me and protecting me is a huge motivator. My family, close friends, and Turnstone family are also factors.

      • #19747
        Mike B

        Great topic Kevin. I’ve found having activities and events that I enjoy on my calendar helps motivate me to get through the daily grind. For me that’s usually having a music concert or live sporting event to look forward to on my calendar.

        • #19763
          Kevin Schaefer

          Thanks Mike! And great tips. I’ll also give you a call soon to let you know about the conference.

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