My experience with cervical injections
Hey everyone, so I was just talking with a forum user over email about my Spinraza experiences, and specifically how I’ve dealt with cervical injections. I know many doctors are opposed to any method other than spinal injections, but I’ve had success in this area.
This was my response to this person’s questions about the procedure, side effects, etc. Feel free to share your own experiences or ask questions.
“As far as the risks, the only kind of horror stories I’ve heard are from people who underwent the surgery and experienced complications. So, nothing to do with the actual drug, but that the operation hasn’t always gone smooth for everyone. I was very anxious about this as well going in, given that I’ve had spinal fusion and wasn’t sure what they would do.With the cervical injections however, they’ve gone extremely well. At first I wasn’t exactly keen on the idea of getting a shot through my neck, but once they did it I experienced hardly any pain. It was more of an awkward, tingling sensation as the drug entered my system. And then it was over before I knew it.Some doctors are fully opposed to anything other than a spinal injection, but I’ve found that the cervical method works great for me. I didn’t experience any side effects, which I’m quite glad of because I had heard about the nightmarish headache others have dealt with. It really does vary on a person-to-person basis, so I can’t promise anything. But speaking from my own experience, the cervical injections have been successful and devoid of any side effects.As far as the results, I haven’t seen anything major, but I’ve had some boosts in energy and my speech has improved a bit. Now that I’m not constantly running out of breath, my speech is less slurred. I didn’t really go in with any expectations, and I’d be perfectly content with the progression of my SMA stopping. But I’ll take any other results.”