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My story in a nutshell
new here, finally, after 20 years of searching they found a name for the thing I suffer from. I got the diagnosis very recently, they tested me for quite a few diseases but finally a neurologist looked at it from a different perspective and took an emg test. Now I can start to get accepting the diagnosis. Reading in the forum will very likely be of help to me.
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3 Replies
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Welcome! Nice to have you here. Although SMA isn’t a diagnosis anyone wants, I bet it’s a bit of relief to have some answers. I think you’ll find this to be a great community to learn from and share with. If you ever have questions please don’t hesitate to ask.
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Welcome! I’m Kevin Schaefer, one of the forum moderators, and I have SMA Type 2.
Like DeAnn said, diagnosis is never easy, and you’re probably overwhelmed right now. But this is a very supportive online community, and we’re happy to help anyway we can. Thanks for joining us!
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Welcome aboard!
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