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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 3 replies, 3 voices, and was last updated 1 month, 2 weeks ago by Alyssa Silva.

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    • #23990
      Alyssa Silva
      Keymaster

      Hi all. I just wanted to share a series I binge-watched over the weekend! It’s called Lenox Hill, and it’s on Netflix.

      It’s a docuseries that follows 4 physicians (2 neurosurgeons, an OBGYN, and an ER doctor) around a Manhattan hospital. It was fascinating to watch. And as someone who is often a patient, I found it really interesting to get a bird’s eye view of where I usually am in hospital settings. The different perspective was refreshing.

      Not going to lie, there were times in the series where I actually teared up. To see these doctors so dedicated to their patients and personally invested in their well-being reminded me how lucky I have been to have (mostly) had such a great team follow my case throughout my life. I am forever indebted to them.

      Have you seen the show yet? There is a lot of blood and brain surgeries you’ll see, so it could be a little triggering to some. If not, I highly recommend it.

    • #23997
      Maria Teresa Orozco
      Participant

      I loved watching Lenox Hills. Hopefully, we get a second season I found doctors to be not only professional but most important human. I give it two thumbs up.

    • #23998
      DeAnn R
      Keymaster

      Sounds right up my alley.

    • #23999
      Alyssa Silva
      Keymaster

      Yes, I hope they come out with a season 2 VERY soon! I could not stop thinking about how they have been handling the craziness and devastation from the last few months while watching it. Would love to get an update. (And honestly give them a hug.)

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