It’s probably safe to assume parents are the primary caregivers to people with SMA; even into adulthood. I’m 50 years of age and my mother is still my primary at 70 years of age. I have home healthcare come in week mornings to get me up, and private help on weekends and some evenings. Private help was found by word-of-mouth. One area I found good help was our local community college where students are looking to obtain their CNA or higher. They typically are excellent candidates who are young, not yet married or have children, and are looking to earn extra money. If you find one, you’ll usually find another. That’s how it evolved for me anyway. They develop friendships in class and can suggest fill-ins for when they can’t make it. I’m trying to move out on my own, but finding good reliable help is very difficult. Especially when it comes to overnight stay. Agencies really sock it to someone needing overnight help. I’m going to try colleges in a nearby city, but it’s going to be like finding a needle in the haystack. Free rent and utilities plus earning some extra spending money should be enticing, but we’ll see. If it doesn’t work out after a month or two, and my overnight quits, I’m in trouble. I’m typically good at problem solving, but this has been my most difficult.