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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 1 reply, 1 voice, and was last updated 2 days, 9 hours ago by Halsey Blocher.

    • Author
      • #21950
        Alyssa Silva

        Finding the right caregivers can be like searching for a needle in a haystack. I’ve been there many times.

        Typically my mom and I like to start out by using word of mouth. We feel as though the chance of hiring someone that a friend or family member already knows gives us a better probability of it working out well.

        What resources do you use to hire caregivers? Ads? Websites? Social media? Would love to know for the future.

      • #21998
        Halsey Blocher

        We often do the same things. We encourage our friends to share and ask people that we know personally. We also started a Facebook page. It has a simple job application attached so they can find out if they are an eligible candidate. We’ve tried ads on a few other sites as well. Sadly, advertising isn’t usually cheap. The hardest part for us is that I have to have RNs or LPNs because of the level of care that I need. It narrows the pool of people a bit.

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