I know we’ve probably touched on this before, but how do you cope with being on other people’s schedules? It’s usually more of an annoyance for me that I just shrug off, but it can be really irritating. Today, my PCA got me up later than usual. Luckily, I don’t have much going on, but it just makes me feel rushed. I was also planning on going to Mom’s today. I thought she’d be here early, so I haven’t gotten into anything. I haven’t heard from her yet. I just could’ve gotten so much done. Oh well, just thought I’d voice my frustration while I wait.
DeAnn, I totally understand. Being at the mercy of other people’s schedules is something I’m accustomed to, but it’s never something I enjoy. I try to stick to a rigid schedule and be conscious of other people’s time, but it’s frustrating when a caregiver or someone messes that up. It can drive me crazy. Sometimes just venting about it helps.
This is just one of those things. Even if you’ve managed to leave your parents’ home and/or get your own caregivers, the fact is we rely on someone else to survive. I can’t put into words how frustrating it is. I approach it like I do everything else—one day at a time. I have enough strength to conquer today’s challenges, but if I start taking on future trials right now, I’ll become overwhelmed.
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