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    Planes, Trains, & Accessible Travel With SMA

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    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 2 replies, has 3 voices, and was last updated by  Halsey Blocher 2 months, 3 weeks ago.

    • Author
      Posts
    • #19104
       Kevin Schaefer 
      Keymaster

      Hello again. I wanted to share Michael’s latest column with you all: https://smanewstoday.com/2019/05/29/music-instrument-choir-extracurricular-activity/.

      This is an encouraging post for parents everywhere, as well as those of us with SMA. I know that for me, doing extracurriculars like school plays and clubs were some of my favorite parts of school. I know I wouldn’t be the person I am today if I hadn’t taken advantage of these opportunities when I was younger.

      Likewise, I encourage parents out there to let your kids be active and explore their passions. SMA might prevent us from doing a lot of physical activities, but it doesn’t prevent us from doing a lot of other things. I’m really happy that Ella found her love for singing.

      Do your kids participate in any extracurriculars? What questions do you have?

    • #19114
       Ryan Berhar 
      Keymaster

      It’s really cool that Ella can sing well despite SMA. I’ve mentioned it before, but chess was always an extracurricular activity I loved, because it’s strictly mental. It’s always been the one activity in which I felt like I was on equal ground as everyone else.

    • #19118
       Halsey Blocher 
      Participant

      I was in church choir when I was Ella’s age, and loved it! It isn’t something I continued with when I got older, but I really enjoyed and made some great memories.

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