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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 2 replies, 3 voices, and was last updated 6 months, 1 week ago by Halsey Blocher.

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      • #19104
        Kevin Schaefer
        Keymaster

        Hello again. I wanted to share Michael’s latest column with you all: https://smanewstoday.com/2019/05/29/music-instrument-choir-extracurricular-activity/.

        This is an encouraging post for parents everywhere, as well as those of us with SMA. I know that for me, doing extracurriculars like school plays and clubs were some of my favorite parts of school. I know I wouldn’t be the person I am today if I hadn’t taken advantage of these opportunities when I was younger.

        Likewise, I encourage parents out there to let your kids be active and explore their passions. SMA might prevent us from doing a lot of physical activities, but it doesn’t prevent us from doing a lot of other things. I’m really happy that Ella found her love for singing.

        Do your kids participate in any extracurriculars? What questions do you have?

      • #19114
        Ryan Berhar
        Participant

        It’s really cool that Ella can sing well despite SMA. I’ve mentioned it before, but chess was always an extracurricular activity I loved, because it’s strictly mental. It’s always been the one activity in which I felt like I was on equal ground as everyone else.

      • #19118
        Halsey Blocher
        Participant

        I was in church choir when I was Ella’s age, and loved it! It isn’t something I continued with when I got older, but I really enjoyed and made some great memories.

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