• Sponsored Post

    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 2 replies, 3 voices, and was last updated 6 months, 1 week ago by Halsey Blocher.

    • Author
      • #19104
        Kevin Schaefer

        Hello again. I wanted to share Michael’s latest column with you all: https://smanewstoday.com/2019/05/29/music-instrument-choir-extracurricular-activity/.

        This is an encouraging post for parents everywhere, as well as those of us with SMA. I know that for me, doing extracurriculars like school plays and clubs were some of my favorite parts of school. I know I wouldn’t be the person I am today if I hadn’t taken advantage of these opportunities when I was younger.

        Likewise, I encourage parents out there to let your kids be active and explore their passions. SMA might prevent us from doing a lot of physical activities, but it doesn’t prevent us from doing a lot of other things. I’m really happy that Ella found her love for singing.

        Do your kids participate in any extracurriculars? What questions do you have?

      • #19114
        Ryan Berhar

        It’s really cool that Ella can sing well despite SMA. I’ve mentioned it before, but chess was always an extracurricular activity I loved, because it’s strictly mental. It’s always been the one activity in which I felt like I was on equal ground as everyone else.

      • #19118
        Halsey Blocher

        I was in church choir when I was Ella’s age, and loved it! It isn’t something I continued with when I got older, but I really enjoyed and made some great memories.

    Viewing 2 reply threads
    • You must be logged in to reply to this topic.

    ©2019 KLEO Template a premium and multipurpose theme from Seventh Queen


    We're not around right now. But you can send us an email and we'll get back to you, asap.


    Log in with your credentials


    Forgot your details?


    Create Account

    Copyright © 2017-2019 All rights reserved.