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Time Is Motor Neurons

A father’s perspective: Our journey to finding a treatment

When Quinn, our soon-to-be-born daughter, didn’t make as much movement in the womb as our other 3 children, my wife, Annie, and I thought we had the “chillest” baby in the world. We joked that she was saving up all her energy for when she entered this world kicking and screaming. Quinn was born in August 2018, and she was the most beautiful little girl. Over the first few months, nothing seemed out of the ordinary. In fact, she appeared healthy and had strong upper body strength. But by the time Quinn’s 9-month check-up came around in June, her physical condition started to change.


This topic has 2 replies, 3 voices, and was last updated 8 months ago by Halsey Blocher.

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    • #20751
      DeAnn R
      Keymaster

      If you know me at all, you know winter is my least favorite season followed by fall. Don’t get me wrong, each season has its benefits, like a frost killing off mosquitoes, but for me the downfalls usually outweigh the upsides of these two seasons. I live in the upper Midwest, I mean about as upper as you can get. Change of seasons is inevitable, so I’m going to do my best to prepare and embrace it.

      One aspect of autumn I despise is that I never know when the last nice day will be. You know, the day where you can walk outside (yes I’m using that term figuratively) and not be chilly. To combat that I already have my various weights of ponchos at hand. My fuzzy socks are next to my thin ones and my long sleeves next to my t’s. I didn’t find a good sale on hand warmers last year, so I’m afraid I’ll be paying full price for that essential.

      I’m not the only one seeking shelter as the temperatures plummet. Bugs do too. Both the viral kind and the ones with 8 legs. Spiders have 8 legs right? Not that I get close enough to count. I’ve heard those creepy creatures don’t like peppermint oil, so I have a mixture ready to spray in every corner and crevice of the house. As for the other type of bugs I referred to I’ve purchased my elderberry syrup, have my germ fighting oils in my diffuser, stocked up on hand sanitizer and have requested a flu shot when they become available. Those viruses are going down!

      Even though I’ll never fully enjoy the beautiful fall foliage, as I know I’ll need to recruit someone to rake up the leaves after they fall, I can at least be prepared. Do you do any prep for the changing seasons? What are your fall essentials?

    • #20784
      Ryan Berhar
      Participant

      That stage of “ is this a t shirt or winter coat day?” is kind of annoying. Lately I’ve been making sure I have my vest on hand. I can get away with it and not a coat at this point.

    • #20787
      Halsey Blocher
      Participant

      My wardrobe is also beginning to change as the weather gets cooler. I’ve started wearing half sleeve shirts, and I’m dreading the day I have to get out a coat.

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