For those of you interested in pursuing risdiplam, have you talked to your neurologist or primary care physician in regard to whether or not they are going to be able to prescribe it to their patients?
If so, could you please provide some helpful questions or topics to discuss? As of right now, I plan to stay on Spinraza and observe how Risdiplam plays out for adults. But it is still a definite consideration for the future. Would love to see your input.
Note: risdiplam is the first oral treatment for spinal muscular atrophy awaiting FDA approval. For more information about this treatment, you can get all the details here.