I had a pulmonologist appointment today, and it’s exciting to see my PFT levels maintained, and improved in some areas. On each test, my scores were either higher or the same as last time. I used to see them drop all the time or remain pretty low. It’s exciting to see these developments and to have my pulmonologist give me a good report. I attribute this in part to Spinraza, and also to doing the vest and cough assist consistently.
How often do you see a pulmonologist? What’s a good report look like for you? Do you do anything at home to work on improving your PFT levels? For those of you who are on Spinraza, have you seen improvements in your PFT levels since starting the treatment?