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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”

This topic has 3 replies, 4 voices, and was last updated 1 year, 8 months ago by Adnan Hafizovic.

  • Author
    • #15511
      Kevin Schaefer

      Read Michael Casten’s latest column about his daughter Ella recovering from a recent illness: https://smanewstoday.com/2018/11/14/sma-fighter-powerfully-recovered-viral-illness-hand-foot-mouth-disease/?amp.

      It is that time when a lot of stuff is going around. I’m not the kind of person who can hibernate for too long, but I do take extra precautions during the fall and winter. I wear soft boots and a warm poncho when I’m out, and I do additional vest and cough assist sessions.

      What do you all do to protect you or your kids from illnesses like this?

    • #15519
      Ryan Berhar

      During the horrible flu season earlier this year, I more or less just stayed inside for a couple months. Thankfully I managed to avoid the illness.

    • #15527
      DeAnn R

      I’ve heard a lot about Elderberry syrup.  Has anyone added this to their regimen?

    • #15532
      Adnan Hafizovic

      About elderberry syrup I never used,but I read about it and DeAnn try it why not.

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