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The importance of newborn screening for SMA

Rory and Carolyn met in seminary, fell in love, and got married. They decided to hold off on starting their own family while they settled into their first jobs in North Dakota. After a few years, they moved to Minnesota, where Rory accepted a job as a minister, and Carolyn enrolled in a hospital chaplain residency program. At the time, they did not know how important the decision to move would be for their future family. When they moved, neither North Dakota nor Minnesota had SMA on their newborn screening panel. It wasn’t until March 2018 that Minnesota adopted and implemented newborn screening for SMA, and then several months later, in 2018, Rory and Carolyn’s only son Edan was born.


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      DeAnn R
      Keymaster

      Hey everyone! Happy August!

      So, July was Disability Pride Month. I wasn’t quite sure what to make of this when I first heard about it, but I’ve given it more thought since then. Check out my latest video here, as I share my thoughts on what Disability Pride means. Hope you all enjoy!

      What are your thoughts on Disability Pride Month?

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