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Time Is Motor Neurons

A father’s perspective: Our journey to finding a treatment

When Quinn, our soon-to-be-born daughter, didn’t make as much movement in the womb as our other 3 children, my wife, Annie, and I thought we had the “chillest” baby in the world. We joked that she was saving up all her energy for when she entered this world kicking and screaming. Quinn was born in August 2018, and she was the most beautiful little girl. Over the first few months, nothing seemed out of the ordinary. In fact, she appeared healthy and had strong upper body strength. But by the time Quinn’s 9-month check-up came around in June, her physical condition started to change.

This topic has 1 reply, 2 voices, and was last updated 8 months, 3 weeks ago by Ryan Berhar.

  • Author
    • #20484
      DeAnn R

      Wednesday Kevin shared a 31 Days of SMA story regarding service dogs. That brought to mind another topic. Service dog fraud. More and more this is becoming a problem. People are trying to pass off pets as service animals for various reasons. This is harmful to those of us who do have legitimate service dogs. Sometimes it can be dangerous. Many times it just creates a poor impression of service dogs in general. In my case so many people were claiming therapy and service dogs that the city quit offering free licenses to those of us with service dogs. Luckily I haven’t had any negative incidents out in public, but I’m guessing it’s only a matter of time. I’m attaching a link to pledge against service dog fraud https://secure.cci.org/site/SPageNavigator/stop_fraud_pledge.html This is the reputable organization where I got my service dog. Have you had interactions with fake service dogs? I’d love to hear your stories.

    • #20538
      Ryan Berhar

      Coincidentally, yesterday, a family member of mine said she’s going to try to make her dog an emotional support animal. I’ve always considered the whole “emotional support” stuff as pretty much nonsense. I’m not sure what the laws are, but it seems like exploiting a loophole. It’s not something I support, but I don’t get too hung up on it either.

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